Answer Summary

Members connected over the challenging journey of getting a PANDAS or PANS diagnosis for their children, sharing concerns about the... Read more

Members connected over the challenging journey of getting a PANDAS or PANS diagnosis for their children, sharing concerns about the seriousness of the condition and whether improvement is possible. Several members offered practical support, including a referral to a specialist in New Jersey who diagnoses PANDAS, and described key symptoms like sudden personality changes and school performance regression that led to their children's diagnoses. A recurring theme was the difficulty of finding knowledgeable doctors and the importance of parent-to-parent support during the confusing early stages of diagnosis and treatment.