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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
St. Louis, MO

My 7 yr old son has autism and we have noticed an increase in issues with attentiveness and focus in school and at home. He has always had problems with this however I feel we have made excuses until now due to him being so young. Now that his responsibilities at home and school are increasing it is becoming a problem. It could take anywhere from 10-20 minutes for him to get dressed or use the bathroom unless you are right there reminding him what he is supposed to be doing. He has the… read more

February 10, 2014
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Answer Summary

Members shared their experiences with Vyvanse and other ADHD medications for children with autism, with many acknowledging the difficult... Read more

Members shared their experiences with Vyvanse and other ADHD medications for children with autism, with many acknowledging the difficult decision to start medication but ultimately finding it helped their children succeed in school and daily life. Several members offered practical advice, including giving side effects like sleep trouble a few weeks to improve (often helped by melatonin), starting at a lower dose like 20 mg instead of 30 mg, trying liquid formulations like Quillivant XR for more precise dosing, and understanding that finding the right medication often requires trial and adjustment as each child responds differently. A recurring theme was reassurance that medicating a child is a deeply personal choice that only parents can make, that properly treating ADHD actually reduces substance abuse risk later in life by 50%, and that ignoring well-meaning but unhelpful opinions from family members is essential when you're the one living with the daily challenges.

A MyAutismTeam Member

You know I had the same concern with meds. And really I still have it but I had to try to make peace with the fact that he may need these meds his whole life.
Also to keep in mind, studies indicate that properly treating ADHD reduces a child's risk of substance abuse later in life by 50%.

February 14, 2014
A MyAutismTeam Member

We use Qullivant XR, which is liquid extended release
Ritalin. I have a few thoughts for you. First, it can take a few weeks for a child to adjust to the medication and often side effects decrease or go away completely in a month or so. We had trouble with falling asleep too but a small dose of melatonin helps and it's not nearly as bad now as it was when he started.
30 mg appears to be the recommended starting dose for this medication but it also comes in 20 mg capsules. You might discuss starting at 20 and titrating up to 30 if you feel like its necessary after a week or two. Also you should never break open a capsule and guess at how much medication your child is getting. I'm really surprised that your doc would even suggest that.
I really like using Quillivant because with the fact that it's a liquid, dosing can be started very small and you can titrate in small amounts until you really dial in the exact right amount.
It's a very personal decision to put your child on medication but my son wouldn't be in a mainstream class without it. No one knows what agony that decision is until they have to make it so don't listen to all the "opinions" that friends and family so helpfully try to put forward. They don't know squat.

February 10, 2014
A MyAutismTeam Member

My son has been taking 20 mg vyvanse for almost 4 weeks now. He has been sleeping and eating fine , but his Tics are MUCH more prominent and he even developed a few more. We are going to try something else soon, but after reading it seems that the medications affect each child differently.
I was VERY resistant and against giving him meds, but after seeing him struggling in school and his work and home... It was time. Even in the last few weeks, I have seen improvements in his class and homework. It was a good choice for us to begin meds. Now we just have to figure out which med works best for him. Thank you for sharing.

February 4, 2018
A MyAutismTeam Member

There are so many meds out there. We fought the meds as well when he was 5. Now he is 10 and we have been through many different meds. We did try vyvanse for about 3 weeks. He did not sleep well on it, even with the Melatonin. You have to give it a couple of weeks to see if it works. If he has tics of any kind call the doc. The point is different meds work for different kids. You just have to find the right one for now. Some work for a while and then stop. I will say that it is the best decision we ever made, to put him on meds. He does much better in school with them.

February 13, 2014
A MyAutismTeam Member

Side effects dry mouth David my son can't sleep after taking it but then they put him on sleeping medication called Trazodone which it help him sleep though the night

June 14, 2017

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A MyAutismTeam Member asked a question 💭
Belmont, NC