My boy (2 1/2) is severely autistic and an incredibly light sleeper. We tried a typical overnight EEG, but every time the nurse began to apply the electrodes, he would wake up groggy and off they would all come.
They suggested either a series of behavioral training/desensitization clinics to get him used to them OR an EEG with sedation.
I don't think the training will help him due to his lack of understanding and his poor sleeping habits, which makes sedation the… read more
We just had a second EEG done and it was loads easier because the technician did the mummy roll and we held him down during application then gauze-d him. The first tech wanted to do it all in reverse
Hello, Have you tried keeping him distracted while applying the electrodes? My son would freak out to just lie down to get anything done so we were able to have him sit in a chair while watching a video and he made it through. We have done a 24 hour EEG before and although challenging - is possible. They wrap the bandage around the electrodes after applying them so that helps a lot to hold them in place. Then I also was pretty much right there the entire time to make sure he would try to yank at them. Definitely sedation is not recommended because it can alter the results.
Are they suspecting seizures or has he had a seizure? My boy had the Grand Mal seizures starting at 20 months. He did go 2 four year spans w/o any, but in July just had 2 back to back. We think it is puberty with the hormones that had something to do with it. I have recently started him on oils and thank God I am able , after 10 years, to get him off of a blood pressure medication, which was used to help sleep, and replaced with Lavander. I am in the process of using another oil to help with seizures so I can wean him off his medication because this med is so harsh on his liver. You can look at my website for an abundance of information on the oils and their uses. www.mydoterra.com/autismhelp. I am not trying to sell you on the oils, but wanting to share a very good resource. I wish I would have found these years ago.
Best of luck and if you have any questions please don't hesitate to message me or call or text me at (Phone number can only be seen by the question and answer creators)
I would try the behavioural approach in that case. Diagnostically overnight EEG without sedation is a lot more useful.
We have a family history of epilepsy, so it's a major concern.
We opted to not do one at that age given there was no way our son was doing to allow it and neurologist wanted us to sign the sedation waiver. Now a bit older, we know he has the patience now to go through it but don't have any sign of seizure activity that we can tell.