Sometimes it's hard to help those closest to us understand what life is really like with raising a child on the spectrum. What do you wish they could better understand about your child?
I wrote what i believe autism stands for and i came up with this...A...always U....understand T....that I ....it's S.....simply M...me The world knows little of the world we live in
I'd like people to know that the gorgeous little boy they see most of the time, changes in certain circumstances through no fault of his own.
I'd like people witnessing meltdowns or other unacceptable behaviours not to judge my child as naughty, needing a good smack, being undisciplined etc.
I'd like people to take a moment to ask themselves what do I know about this family & its circumstances before commenting or judging.
I'd like people to focus on what our kids can do, not what they can't.
I get frustrated when I tell my parents (or friends, or whoever) what my son may have done on a given day and their response will often be "oh, well, thats so normal for a kid his age". Its frustrating because it trivializes how much harder it is for him than his peers to get through a day. How such a normal thing like transitioning from the playground back to the classroom can be so stressful for him, not just upsetting, but really stressful. I just want everyone to understand how hard he works to do the things the the kids around him do naturally. I hear you.
Autism isn't just my daughter's problem or a family problem. It's widespread enough to affect an entire generation now and in the future. I don't understand how autism manifests itself in different people so how can other people without autism in their family fully understand?
It takes a lot of time with therapy, appointments, sleepless nights and watching over her so we don't have a lot of time for outside interests. When we do go out, it's a struggle so don't assume we are irresponsible parents letting our kids run wild. I don't want to lock up our kid in the house for the rest of her life so get used to seeing her and kids and adults like her.
Hopefully, someday she'll have a friend or two so they can get to know her. I know it will be hard for her as kids want to be cool and accepted which is something that's hard to do when she can't act normal all the time and doesn't look like she wants to interact with others.
I understand because they live in a typical world so naturally the answer is typical. We on the other hand live in a world where a simple transition can become a meltdown which sometimes leads to restraining (which I don't believe in ) calls to us, which means we leave go to the school to deal with that situation etc etc. When I hear it will be ok all kids do it I've learnt not to react or comment, because I know better. These schools need positive reenforcements, and they need to understand Re directing the child . Hope it helped.