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Opinions About Group Homes Or Similar Settings After HS (Pls Read My Questions Below.)
A MyAutismTeam Member asked a question πŸ’­

Hi, I'm Alessandra, 50 yrs old, divorced, live in Doral/Miami, FL, an attorney and mother of a neurotypical 11 yr old girl and a 14.5 yrs old boy with moderate autism. My beautiful Prince Sebastian is non-verbal and has some aggressive behaviors although went from a 6 yr crisis to almost none now, thanks to ABA, a change in his environment and CBD oil/medicinal marijuana prescribed to him by an amazinggg neurologist.

Now that he has started his first year of high school ("9th grade" bc of his… read more

posted September 7, 2021
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A MyAutismTeam Member

Hello, just wanted to say that you're a great Mom for thinking about his future. We all have that fear about what will become of them when we're physically incapable. A group is a good idea just have to find one that fits his personality & have the proper staff to care for him. I wish you luck & don't give up youll find one that's best for him πŸ’œ.

posted September 7, 2021
A MyAutismTeam Member

No not acorn, there's others in various states- none of them near me but I would move anywhere to be close to my Prince. You know they're always to us our endless loves, our blessings and num 1 priority... If his Dad and I have already passed, ill, too old to solve things, etc, I guess we just have to trust that the relatives we left in charge of supervising would find a similar place and move him. Btw, my son is def not high functioning and he is non-verbal. His Dad wants to do something- I forgot the name, he went to the school seminars abt that, I havn't yet- it's kind of like a trust or legally organized entity composed of his only sister and cousins who are now ranging from 11-19 yrs old. They would be our eyes once we reach an advanced age and they would vote to make decisions like that one. It's just a legal way to organize his younger and closer relatives that we believe will care about him more than a stranger in order for us to have a "substitute" once we can no longer be on top of his caregivers or institutions in charge of caring for him. It's the best we all can do as a plan for once we pass and we have to pray, have faith in God and keep believing even if not everyone, there are still noble, responsible and caring individuals out there. I mean, those problems you mention exist in residential communities for the mentally disabled, will not go away once we are not here to oversee them so might as well confront our demons, plan ahead now and try to stay positive, right?

posted September 10, 2021
A MyAutismTeam Member

Understood but I said caregiver as in one person not caregivers as in plural. However, in that scenario they would be understaffed 2 to 6 for autism is ( IN MY OPINION) understaffed. Which is why once again one must do extensive research b4 placing an adult w ASD in any group facility bcs it is difficult to trust that they'll get the BEST care. There's nothing wrong with finding the best group home especially if one is incapable of caring for persons w ASD.

posted September 10, 2021
A MyAutismTeam Member

@A MyAutismTeam Member, you can 'EDIT' your comment on here. Just for future reference.
On Group Homes... I research them up to 4 times a year, and I've seen them go from 5 Stars to 2 Stars and some have Legal Issues. I fear that no matter what Group Home an individual may be placed in may be the best one week, the next it could be the worse.
Due to many reasons.
So I hesitate in the thought of placing My ASD Adult in any at the moment.

posted September 10, 2021
A MyAutismTeam Member

Hi Gary, I had never heard you could not take your kid out of a group home but instead, had heard you have the right to do so any time. I understand everything you say, but also wonder if it isn't harder for them to get used to a group home once their parent for example, turns 80 and becomes ill, dies, becomes incapacitated, etc. Also, at that time isn't it already impossible for the parent to supervise, get to know caregivers and choose what they like. I see it at times, kind of like when you find the the school where you see your kid is happy finally after having tried three others. So I think, when he finishes high school I can do that with the group homes, but if I wait till I'm 80 I might not get that chance. Anyways, just some thoughts bc looking forward to hear your opinions. Hugs to all who answered!!! Thanks, thanks, thanks!!!

posted September 9, 2021

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