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A MyAutismTeam Member asked a question 💭
Santa Maria, CA

My grandson refuses to go poop on the toilet. He will urinate on the toilet. He holds it in so long and squeezes his cheeks together to keep from going. The doctor has us giving him miralax, but this has been going on for over 3 years and this cannot be healthy.

March 17, 2013
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Answer Summary

Members rallied around a grandparent whose five-year-old grandson refuses to use the toilet for bowel movements, sharing their own difficult... Read more

Members rallied around a grandparent whose five-year-old grandson refuses to use the toilet for bowel movements, sharing their own difficult experiences with chronic withholding, painful constipation, and years of daily struggles. Several members offered practical strategies that worked for their children, including gradually cutting holes in diapers while sitting on the potty, using rewards like mini pizzas or videos, increasing fiber through gummies and pear juice instead of long-term Miralax, and gently holding children on the toilet with supportive reassurance until fear diminished. A recurring theme was patience and persistence, with many emphasizing that the fear of pain creates a vicious cycle, progress can take years, and celebrating small victories without shame or fuss is essential to helping children overcome this deeply frightening milestone.

A MyAutismTeam Member

The hurt compounds the fear. I think mine was afraid of part of himself falling out , the sound, the "unnatural" position, etc etc. Took a long time of mild laxatives, coaxing and (yes) holding him down. Finally after he did it a few times it was ok. But yes, the size! Also, in a diaper in his sleep, in a fetal position, it sometimes "happened" but that wasn't as frightening to him.

March 19, 2013
A MyAutismTeam Member

I have tried to force him to sit on the toilet when I see him scrunching up in pain, standing on his toes, clinching his little bottom up, and telling me to go away his tummy hurts. He screams and yells at me when I put him on the toilet. I try praising him. I try rubbing his tummy while on the toilet. It just seems to clinch up tighter. I hate to see him in pain daily because of this issue. Be the time he does finally go no wonder it hurts because it is bigger than any 7 foot man would make and as hard as a baseball. It has to hurt.

March 18, 2013
A MyAutismTeam Member

Started going without issue on a daily basis. He even looks forward to sitting on the potty so he can watch train videos on YouTube. Important to give lots of praise too. Good luck.

March 18, 2013
A MyAutismTeam Member

If he will sit on the toilet, you're doing great! Keep making him sit, let him play games, read books, etc. my son would hold it all day and only poop at night after he fell asleep, muscles relaxed and unaware. after months of sittingwith no luck and 3am diaper changes, I went against my 'better judgement'. when he felt the urge to go while on the potty he would clinch and scream in fear. I held him down on the potty. I was supportive, encouraging, and explained to him what his body was doing. It sucked to do that to him but it worked. After only three nights of doing this, he

March 18, 2013
A MyAutismTeam Member

My little one was like that until her biomed dr. started her on Nystatin. Within a week she was going #2 on the toilet at least once per day and has only had a few accidents over the past 2 months.

March 17, 2013

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